First off, we are so thrilled and thankful that we ARE able to get N's SPECT Scan done at Providence Hosp. in Anchorage! I should be able to call and make the appointment today. The Radiologist said that there is a 2-3 day turnaround time, so we should be able to get him up there in the next week or two. It is PFD time up here, so flights are booking up. That will probably be our biggest delay.
We have received back all of the bloodwork. Everything came back normal except that he is extremely low in Vit. D. It's not uncommon up here, but his levels were pretty low-especially considering he takes a mulit-vit that has Vit. D in it. So, we're upping him an additional 1000 i.u. a day.
The best news of all is that we are already seeing massive improvements! It's crazy and almost creepy. I didn't expect to see any changes for at least 6 months by what I've been reading, but it's like a switch has went on. There are two things we have struggled with N about for years. To avoid embarrassing him even more than I already am by having this blog in the first place, I will just say that the human body is full of cavities and spaces, i.e. stomach, bladder, mouth, sinuses. In order to gage that a person has a 'full' feeling in this spaces, you have to receive the message from your brain. Well, my son was not getting those messages so we had food stuffing and over reating among other spatial-planning issues. Like a switch, the past week he has spun a 180 and begun paying attention to his body in normally-developing ways. He has suddenly become the sloooowest eater; taking smaller bites, visiting pleasantly, AND leaving food on his plate instead of reaching for 2nds and 3rds! He is also paying attention to those other biological signals and making sure that he empties those other cavities when they are full. (Is that cryptic yet clear enough? lol) After seeing him calmly put down his Nintendo DS and walk to the restroom the other day, I asked him if was able to better pay attention to his body now, and he said "Yeah. I can feel it so much better now." Wow! It's amazing, yet it makes so much sense. If you live in a head cold-like fog 24/7, it would be understandable that your bodies' signals would be so dulled. No wonder he didn't feel them until he was about to explode or throw up!
Finally, the last bit of news (which also ties into the above), is that his Neurofeedback counselor has been able to successfully work with his front temporal lobe the past two sessions. She is getting a strong signal and he doesn't seem to be complaining about the instant headaches he was getting whenever she tried to stimulate that area before. When I told her about our successes with his spatial planning, she is quite sure that he is finally laying down new pathways in that area of his brain. The pediatrician and I both wish we had been able to do a SPECT scan before she started doing that so we could compare it to now, but oh well...Besides, there's only so much radioactive tracer that I want to inject in my kiddo!
Anyway, thank you for your kind words of encouragement. We are so hopeful and optimistic. The Lord is really working in incredible ways. I pray that we continue to be patient and trusting and not get ahead of Him. I also pray that, somehow (!), our experience will be a help to others who feel stuck on the 'A List'. Hugs and Blessings to you all!
Love,
Hillary
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