Since I have posted about N's rapid
healing progress in a couple of NIDS/Bio-med forums I am in, I have
received several requests for a summary of what his treatment was. In
answer to that, I'm just posting it here so that I can 1) target
multiple requests at once, and 2) continue to share what is working
for us in the hopes it may work for other families! Below is a listing of what his sypmptoms were, followed by a list of the
actual physical triggers, followed by his treatment plan under Dr.
Bock. Again, I share this information with the aim that we can serve
as a source of encouragment, hope, and possible answers to other
families who have a member(s) on the 'A-List'.
Symptoms:
*Very delayed speech (echolalia only
until about age 4) with very little receptive language.
*Hyper-sensitive hearing which led
togeneral sensory defensiveness
*Hypo-senstitive touch (like he was
wearing a snow suit all of the time)
*Very low muscle tone and easily
fatigued
*Inflexibility in regards to daily
activities and desires (extreme tantruming), as well as anxiety and
hyper focusing on select topics.
*Unable to recognize social cueing
*Daily headaches (He didn't realize he
had them until we made dietary changes while waiting for first Dr.
appointment! Suddenly he was aware that this was not a typical
feeling for everyone!)
*Spatial planning-not recognizing
peoples' personal space, or his own in regards to bodily cavities.
This led to him 'food stuffing' in his mouth, overeating in his
stomach, and not recognizing a full bladder.
*Chronic ear infections from 0-2yrs
(stopped once PE tubes were put in)
*Fine and gross motor incoordination
Physical ailments that
were revealed from labwork in 2013:
*Sensitivity to
gluten, dairy, corn, beef, and pork
*Not properly
processing Salicylates
*Overactive
amygdala (leading to more inflexibility, anxiety, and hyper-focus)
*Bacterial infection in his stomach (It
is our opinion that this bacterial infection and the yeast
overgrowth, listed below, are probably the two main causes of this
whole mess. He was put on multiple rounds of antibiotics for his
infant ear infections, and given oral steroids for severe croup. It
was following these interventions that he started to fall behind in
achieving milestones and exhibit behaviorial changes.)
*Yeast Overgrowth (Again, probably as a
result of the oral steroids and antibiotics.)
*No traces of good E.Coli bacteria in
his stomach
*Borderline hypo-thyroidism
*Bodily 'detox' and metabolic systems
out of balance and not functioning properly to naturally rid body of
environmental contaminants.
*According to the SPECT scan, he had a
slight profusion in his brain (caused by the inflammation of inflamed
immune tissues). It was a flat horizontal profusion that started in
the frontal lobes above his eyebrows and extended back near his ears.
Treatments:
*Glutiathione NAC cream to help body in
detoxing of environmental aggravants
(Important! He had to use
a compounded cream instead of pills since Candida in the digestive
tract can feed off of the pills!) He
is also taking a Methyl B-12 nasal spray to help with this as well.
The transdermal (a.k.a. 'shots') method is preferable, but we were
unable to get those compounded up here, so we use the nasal spray
instead.
*Magnesium
Sulfate Cream to help with processing of salicylates. Also had to
reduce the intake of artificial dyes, nuts, and coconut products
which are high in salicylates. Initially he was taking daily epsom
salt baths as well, but has phased these out.
*Various
vitamin and mineral supplements that his labs showed a malabsorption
of ,i.e. Vit. K, Vit. D, Acetyl L-Carnitine, Ubiquinol, Iodine, Omega
3, Taurine, etc. (due to his digestive tract infections).
*High powered
probiotics to re-balance his gut cultures.
*Nystatin for the
Candida overgrowth. After he was showed significant improvement with
that, we switched to Candex and then off of the anti-fungals
entirely.
*Biocidin for the
bacterial infection.
*Mutaflor to
replenish his good E.Coli
*Instead of using
an SSRI to calm his overactive amygdala, we tried an oxytocin nasal
spray. It has worked beautifully without any of the side affects of
the SSRIs.
*Namenda to calm
the neuro inflammation.
*Low does of
Armour for thyroid.
So far, so great!
After his
appointment last month, in which we reviewed his labs from August, we
found that the stomach infection is gone! The yeast infection is
gone! Thus, many of his supplements were reduced or eliminated after
seeing levels that indicated his body was digesting and absorbing
them properly. He is off of the Nystatin, Mutaflor, Biocidin, and
reduced probiotics.
He tested clear
for beef, pork, and corn!
His daily
headaches were reduced once we started the anti-yeast regiment, and
then fully went away once we had implemented the Namenda for the
neuro inflammation!
His muscle tone
since starting the Armour is improved greatly, and we have reduced
that dosage!
His flushed ruddy
skin tone has gone away. He now has a beautiful ivory
comlexion.
He has increased
focus, better motor control, and more is more aware of the people
around him. His brain is finally healthy enough to be able to learn
all of those social thinking skills that he needs to navigate
society.
We
see that his metabolic and detox systems are improved but not fully
healed. Since his yeast overgrowth is gone, we can now put him on
NAC pills which we hope will give us better results than the cream in
that area. He is still taking the Oxytocin and B-12 nasal spray until
we see that those systems are healed.
He just feels
better! He confided that he used to have stomach aches and have
problems passing stools until recently. Just like with the
headaches, he didn't realize that wasn't typical for everyone. He has
felt those pains for so long that he didn't realize it was a problem
until it went away and he felt so much better! Wow! That right
realization right there makes all of the cost, travel, and medicine
juggling worth it!! We will just keep plugging away at the other
areas in need of further treatment, until his immune system is fully
restored and he no longer needs medical intervention.
I am so thankful
for N's progress. I pray that this will help others the way I have
been helped in the bio-med blogosphere. If I had followed N's
pediatrician's recommendations, he would be on amphetamines for daily
headaches, unable to eat many of the foods he can now eat, and be in
therapy forever. Now I foresee a much brighter and 'normal' future
for him. In fact, he is now in Boy Scouts so that he can learn
lifeskills to help him be a well-rounded man someday. Wow! Such
progress in such a short time! Thank you, Lord!
